Rett’s Syndrome, never heard of it before, neither had I until a bunch of years ago. A young lady named Carole Benjamin called me and asked for a quote on a balloon arch. She began by telling me the colors as so many people do, pink and baby blue, those were her color choices.
I then began my list of questions to her. How is it to be used? Will it be used inside or outside? Now I needed to calculate the length of the arch. There is a basic formula to calculate the length of an arch. Width plus twice the Height will give you the total length of an arch.
Once the total length was calculated, the next questions were; where, when, and what time. Before I gave her a price I asked what the occasion or event was and Carole then told me it was a walk / run race for Rett’s Syndrome.
Carole explain to me what Rett’s Syndrome is a disorder of the nervous system that leads to development reversals, especially in language and hand use. Rett’s occurs almost exclusively in girls and may be misdiagnosed as autism or cerebral palsy. The condition affects about 1 out of 10,000 children.
The disease slowly progresses until the patient is a teenager. Then symptoms may improve. For example, seizures or breathing problems tend to lessen in late adolescence. Now I am no expert on this disease, but you can find out more about Rett’s Syndrome on the internet. Check it out…
Back to my story, I followed up with a call to Carole after the first race and asked how everything went. She told me that she was discouraged on the turn out and the amount of money that was raised. Carole also told me it was the first and last race she would ever do. A lot of years later, Carole, her family and friends have made the Walk-N-Roll an annual event that gets bigger and better each year. In my book Carole is a saint, other people would have just quit, but not Carole.
So if you happen to be around Clement Park in Littleton, Saturday, August 11th at around 8:00 am, do me a favor and walk or run for Carole Benjamin and Rett’s Syndrome. Tell Carole, you read about it on my blog, she will be a happy camper to see you and she will thank you for helping support this worth while cause.